Seeking New Board Members!
Join the Bloom Syndrome Association's Board of Directors: Make a Meaningful Impact in Our Community Are you passionate about supporting individuals and families affected by Bloom syndrome? Do you want to make a real difference in the rare disease community? Now is...
2024 Bloom Syndrome Grant Program Now Open: Join Us in Advancing Research
We are thrilled to announce the opening of the 2024 Bloom Syndrome Grant Program! This new program, in partnership with the Bloom Syndrome Foundation - Europe and the Orphan Disease Center at the University of Pennsylvania, is a cornerstone of our efforts to advance...
Rare Disease Day Fundraiser: Get Your BSA T-Shirt Today!
In honor of Rare Disease Day 2023, we've launched a fundraising campaign featuring t-shirts with the new Bloom Syndrome Association logo below! Our goal is to help spread awareness of all rare diseases, including Bloom syndrome, and to educate and support all...
2022 Conference Registration is Now Closed
The 2022 Bloom Syndrome Patient & Family Conference is right around the corner on August 5-7! Conference registration is now closed. Please contact Susan Zaslaw (smzaslaw@gmail.com) if you need to update your registration information. See you soon!
Transition Time for the Registry
Below is a note from Dr. Chris Cunniff, Director of the Bloom Syndrome Registry, who will be retiring on June 30. Dear Members of the Bloom Syndrome Community, After 35 years of work as a medical geneticist and academic pediatrician, I am looking forward to beginning...