Announcing our new Research Council and Patient-Centered Research Strategy!
Announcing our new Research Council and Patient-Centered Research Strategy! The Bloom Syndrome Association (BSA) is proud to announce two important milestones: the creation of our Research Council and the launch of our Patient-Centered Research Strategy (SECURE...
Honoring Rare Cancer Day with a $500,000 Gift for Bloom Syndrome
Yesterday, on Rare Cancer Day, the Bloom Syndrome Association (BSA) reflected on the challenges faced by those living with rare cancers - and celebrated an extraordinary milestone: a $500,000 gift to support our ongoing work to understand and address cancer in Bloom...
Blossoming Hope: Join the Event Management Team for the 2026 Bloom Syndrome Association Family Conference
Help Us Cultivate Connection and Hope in Los Angeles! The seeds of excitement are officially planted—planning for the Bloom Syndrome Association’s 2026 Family Conference has begun, and we’d be over the moon to have you grow with us! Volunteers are the heart of the...
BSA Announces 2024 Seed Grant Awards to Advance Bloom Syndrome Research
The Bloom Syndrome Association is proud to announce three new seed grant awards that will support innovative research to improve understanding, care, and future treatment options for individuals living with Bloom syndrome. These projects, selected through a...
Seeking New Board Members!
Join the Bloom Syndrome Association's Board of Directors: Make a Meaningful Impact in Our Community Are you passionate about supporting individuals and families affected by Bloom syndrome? Do you want to make a real difference in the rare disease community? Now is...