Join the Bloom Syndrome Association’s Board of Directors: Make a Meaningful Impact in Our Community
Are you passionate about supporting individuals and families affected by Bloom syndrome? Do you want to make a real difference in the rare disease community? Now is your chance! The Bloom Syndrome Association (BSA) is seeking motivated and committed community members to apply to serve on our Board of Directors.
Why Serve on the Board?
Bloom syndrome is an ultra rare genetic disorder that affects many aspects of life, from health challenges to emotional and social well-being. As a community, we rely on the dedication of volunteers, advocates, and leaders to provide support, raise awareness, and advance research. By joining our Board of Directors, you’ll have the opportunity to:
- Shape the Future of the Association: The Board of Directors plays a crucial role in guiding the vision and direction of the BSA. Your voice will help shape the programs, advocacy efforts, and resources we offer to our members.
- Expand Support for Families: Families and individuals living with Bloom syndrome face unique challenges. By joining the Board, you’ll help drive initiatives that provide direct support to those in need, from education to social-emotional assistance.
- Advocate for Research and Policy Change: We are committed to advancing research that brings hope to individuals with Bloom syndrome. As a board member, you’ll help advocate for increased research funding, build partnerships with leading scientists, and policies that improve the quality of life for our community members.
- Develop Leadership Skills: Serving on the Board is a fantastic opportunity to develop your leadership and advocacy skills. You’ll collaborate with other passionate and dedicated individuals, work on projects that are meaningful, and gain valuable experience that can help you grow personally and professionally.
- Be Part of a Supportive Community: The Bloom Syndrome Association is more than just an organization—it’s a family! Our board members form lasting connections with others who are just as passionate about making a difference.
What We’re Looking For
We are seeking individuals from diverse backgrounds who are committed to making a positive impact. Whether you have professional experience in nonprofit leadership, finance, communications, or simply a strong passion for supporting the Bloom syndrome community, we encourage you to apply.
We value fresh perspectives, new ideas, and the energy that comes from people with varied experiences. You do not need to have direct experience to serve; your commitment to helping others and working collaboratively is what matters most.
Time Commitment
Board members are expected to attend monthly meetings (virtually), participate in committee work, and contribute their expertise to various initiatives. Board members must agree to a Board Member Agreement outlining responsibilities and expectations. The term of service is three years.
How to Apply
If you’re ready to make a difference, we’d love to hear from you! To apply, please fill out the application form here by October 31. If you have any questions, feel free to reach out to us at info@bloomsyndromeassociation.org. We are happy to provide more information or discuss how your unique skills can contribute to the Bloom Syndrome Association.
Together, We Can Make a Difference
The Bloom Syndrome Association thrives on the commitment and energy of community members like you. By joining our Board of Directors, you’ll help us continue our mission of supporting individuals and families affected by Bloom syndrome. Your leadership could be the key to advancing research, expanding support services, and bringing hope to countless lives.
We look forward to welcoming passionate new members to our team—apply today!