Welcome to the Bloom Syndrome Association
Connecting, educating & supporting the Bloom syndrome community
The Bloom Syndrome Association (BSA) is a nonprofit organization whose mission is to connect, educate, and support the international Bloom syndrome community and stimulate research that leads to longer, healthier lives.
Bloom Syndrome Overview
Patient & Family Resources
Research
Driven by our love of family & our hopes for the future
Key Resources & Programs
BSA Welcome Letter
Checklist for New Diagnosis
Patient & Family Handbook
Bloom Syndrome Registry
Community Data Project
Other Studies & Trials
New Diagnosis
Supporting individuals, parents & families
Receiving a diagnosis of Bloom syndrome can be a difficult time for families. The BSA is here to help.
Make a difference
Bloom syndrome is an ultra-rare disorder and is not well understood. Your support will help us meet our mission and make a difference for all of those affected by Bloom syndrome.
Donate to the BSA
Get Involved
Upcoming Events
Join the Bloom syndrome community